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Urge Congress to protect crucial funding for NIH and FDA

Mar 26, 2025

Urge Congress to protect crucial funding for NIH and FDA

The Fiscal Year 2026 (FY26) appropriations process continues! Congress has important decisions to make in the upcoming months regarding the fiscal year 2026 funding for the National Institutes of Health (NIH) and the Food and Drug Administration (FDA). Send a message to your Senators and Representative today urging them to make rare disease health a priority by supporting robust funding for the NIH and FDA. Many treatments for rare diseases have been developed from the work done by the NIH, and FDA plays a critical role in delivering on the promise of these new treatments. It is critically important to ensure this support continues in order to help current and future generations.

 

Follow the link below to NORD’s website which offers an auto-generated letter you can send to both your Senators and your Congressman. Just type in your name, and address and fill in the blanks. https://rarediseases.org/driving-policy/take-action/#/257