Donna Appell, President and Executive Director of the HPS Network, joined two other panelists on a company-wide webinar for Blue Cross/Blue Shield as part of its Rare Disease Webinar Series: Patient and Family Perspectives.
Appell explained HPS to the audience, and then explained why covering genetic testing for HPS is so important. “I can’t know if it will make it easier for families affected by HPS to get tested, but I hope that we were heard, and maybe next time, when another family needs an approval they might just remember this talk.”
