WHAT
The AID is a powerful opportunity for individuals with Albinism/HPS/CHS and their family members to contribute directly to research that will enhance our understanding of Albinism/HPS/CHS.
HOW
The AID is more than just a data collection system. It’s an interactive participant-driven resource that can empower the Albinism/HPS/CHS community. Eligible participants include anyone around the world who has been diagnosed with Albinism/HPS/CHS. We hope the data collected leads to the development of new diagnostic and treatment options.
WHERE
Help make a difference in the Albinism/HPS/CHS community! Sign up today for the Albinism International Databank (AID) at www.aid.iamrare.org.