The Penn Medicine Orphan Disease Center (ODC) will host the 8th Annual Million Dollar Bike Ride on Saturday, June 12, 2021 to raise money for rare disease research. The Million Dollar Bike Ride brings over 750 cyclists and volunteers to Penn’s campus to ride either...
Member Events - Articles
International Albinism Awareness Day is Sunday, June 13, 2021
International Albinism Awareness Day (IAAD) is on Sunday, June 13, 2021. This year’s theme and hashtag is #StrengthBeyondAllOdds. On this day, we would like to showcase how resilient and powerful those with albinism are. It is a day to share our voice, show our...
HPS Awareness Day April 6, 2021
Tuesday, April 6th is HPS Awareness Day! Starting in 2019, the HPS Network designated April 6th as HPS Awareness Day. Why April 6th? That is the HPS Network’s birthday, as we were incorporated as a 501c3 on. April 6, 1995. What is HPS Awareness Day? It is our one...
February 28 is Rare Disease Day!
The HPS Network celebrated Rare Disease Day 2021 by hosting a rare disease trivia on Gatherly. Thanks to our graduate student interns who helped curate the facts used for the event! Our membership was asked to spread awareness by sharing their stories on social media....
New Years Eve 2020
Join Donna on Wednesday, December 30, 2020 at 8 pm. on Gatherly.Click here for more information!
Christmas Concert December 12, 2020
Annual HPS Christmas Concert Jingles and Jazz 2020 was held on December 12, 2020This year, our annual Jingles and Jazz Christmas Concert was virtual.
Spooktacular Party October 30, 2020
Spooktacular Party was on October 30, 2020. Everyone had a great time! Thanks for attending.