HPS Network supports SOAR Act (S. 3821, H.R. 7829) The HPS Network joins with a coalition of other patient advocacy groups and interested professionals to support the Supplemental Oxygen Access Reform Act or SOAR Act (S. 3821, H.R. 7821). The legislation would...
Did you know the HPS Network advocates for federal research funding? Rick Bowman has been championing this cause for us and he needs your help. If you are interested and able to meet with your members of Congress either virtually or in person, please send us your...
The American Thoracic Society (ATS) Public Advisory Roundtable (PAR) is hosting its eleventh annual “Lung Disease Week at the ATS” series this year. This is a society-wide initiative that recognizes the many lung and airway disorders for which ATS PAR member...
Mothers!! Join us for our annual Mothers’ Workshop with Sheila Adamo, LCSW, CADC This year we are offering two workshops! These workshops provide an opportunity for mothers of children with HPS to connect, learn and empower one another. Participants will have...
The American Thoracic Society is holding it’s annual conference in Washington DC this year. On Saturday, May 20th is a FREE Patient/Family education day event. This year’s talks will focus on providing pulmonary healthcare access for all. The details...
