In this German study, attention was given to renal (kidney) disease in HPS. Zebrafish, which have similar genetic structures to humans, were used. Results showed that HPS proteins in certain types of HPS caused injury to the kidney in the Zebrafish. This study gives...
The HPS Network celebrated Rare Disease Day 2021 by hosting a rare disease trivia on Gatherly. Thanks to our graduate student interns who helped curate the facts used for the event! Our membership was asked to spread awareness by sharing their stories on social media....
The EveryLife Foundation is accepting applications for their new undergraduate/graduate scholarship program called RAREis. To qualify, students must be at least 17 years old and enrolled in a two-year, four-year or graduate level college program. Students can be...
This Polish article shows that HPS was diagnosed at an older age due to limited knowledge of symptoms presenting earlier in life. Life style habits such as smoking and frequent untreated infections could have negative effects and might have sped up the lung disease in...
By now you’ve heard that the Annual HPS Conference will be virtual. We are all very excited at this new opportunity for our membership who may not normally be able to attend our physical conference in Long Island to attend our Miles Apart But Close at Heart...
