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About the Network

  • Our Mission

    • The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for people and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders.
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  • Board of Directors

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  • Scientific Advisory Board

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  • Annual Reports

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  • Member Photos

    • Pictures of people with Hermansky-Pudlak Syndrome.
    Our Member Photos

  • Member Stories

    • Real life stories from people living with Hermansky-Pudlak Syndrome.
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