The Hermansky-Pudlak Syndrome Network honored the National Organization for Albinism and Hypopigmentation (NOAH) with the World of Difference award at the 19th Annual HPS Network Conference.
NOAH serves people with all types of albinism and their families through informational resources, promoting positive attitudes about albinism and providing many venues for fellowship and support.
NOAH has been a loyal supporter of the HPS Network conference, as well as the HPS Network, for many years. The HPS Network conference serves families affected by the HPS types of albinism. These types of albinism not only involve decreased pigmentation and decreased visual acuity, but they also involve a bleeding disorder. Some types of HPS also involve other health issues such as digestive and lung disease. NOAH’s support helps the HPS Network address the unique needs of those with the HPS types of albinism.
NOAH Executive Director Michael McGowan was at the event to accept the award on behalf of NOAH.
This Website is intended to provide information. It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action with regard or otherwise, based on the information on this website without first consulting a physician.