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Home :: About the Network
About the Network
Our Mission
The Hermansky-Pudlak Syndrome Network Inc. is a volunteer self help, not for profit support group for people and families dealing with Hermansky-Pudlak Syndrome (HPS) and related disorders such as Chediak Higashi Syndrome.
Our Member Stories
Real life stories from people living with Hermansky-Pudlak Syndrome.
Our Member Photos
Pictures of people with Hermansky-Pudlak Syndrome.
HPS Around the Web
Check out videos and commentary by people with HPS.
Contact Us
- By phone
- 1 (800) 789-9HPS
- By e-mail
- info@hpsnetwork.org
Disclaimer
This Website is intended to provide information. It is not intended to, nor does it, constitute medical or other advice. Readers are warned not to take any action with regard or otherwise, based on the information on this website without first consulting a physician.